A Treatment Program for Adolescents With Phenylketonuria

Linda A. Gleason, Kimberlee Michals, Reuben Matalon, Patricia Langenberg, Savitri Kamath

Research output: Contribution to journalArticle

24 Scopus citations

Abstract

A treatment program for adolescents with phenylketonuria (PKU), incorporating education, goal-setting, self-monitoring, contracts, and rewards, was evaluated by measuring knowledge of PKU, blood phenylalanine concentrations, and health locus of control (LOC) before and after participation in the program. Of the 16 subjects, seven subjects successfully completed the program by achieving behavioral goals. These subjects increased their knowledge of PKU and decreased their blood phenylalanine concentrations, but the nine nonsuccessful subjects did not. There was no significant change in LOC scores for either group. There was a significant relationship between baseline blood phenylalanine levels and success with the program. Therefore, this pilot study demonstrates that adolescents who have already achieved some measure of metabolic control can be expected to be most successful with this program and realize the greatest benefits from it in the form of increased knowledge of PKU and even better metabolic control.

Original languageEnglish (US)
Pages (from-to)331-335
Number of pages5
JournalClinical pediatrics
Volume31
Issue number6
DOIs
StatePublished - Jun 1992
Externally publishedYes

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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