Abstract
Purpose: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. Methods: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. Results: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. Conclusion: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 127-133 |
| Number of pages | 7 |
| Journal | Journal of Adolescent and Young Adult Oncology |
| Volume | 6 |
| Issue number | 1 |
| DOIs | |
| State | Published - Mar 1 2017 |
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Keywords
- adolescent and young adult
- cancer
- follow-up care
- survivors
- values
- willingness to pay
ASJC Scopus subject areas
- Oncology
- Pediatrics, Perinatology, and Child Health
Cite this
Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care. / Kaul, Sapna; Smits-Seemann, Rochelle R.; Zamora, Eduardo R.; Spraker-Perlman, Holly; Boyle, Kevin J.; Kirchhoff, Anne C.
In: Journal of Adolescent and Young Adult Oncology, Vol. 6, No. 1, 01.03.2017, p. 127-133.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care
AU - Kaul, Sapna
AU - Smits-Seemann, Rochelle R.
AU - Zamora, Eduardo R.
AU - Spraker-Perlman, Holly
AU - Boyle, Kevin J.
AU - Kirchhoff, Anne C.
PY - 2017/3/1
Y1 - 2017/3/1
N2 - Purpose: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. Methods: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. Results: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. Conclusion: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
AB - Purpose: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. Methods: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. Results: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. Conclusion: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
KW - adolescent and young adult
KW - cancer
KW - follow-up care
KW - survivors
KW - values
KW - willingness to pay
UR - http://www.scopus.com/inward/record.url?scp=85015239287&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85015239287&partnerID=8YFLogxK
U2 - 10.1089/jayao.2016.0054
DO - 10.1089/jayao.2016.0054
M3 - Article
VL - 6
SP - 127
EP - 133
JO - Journal of Adolescent and Young Adult Oncology
JF - Journal of Adolescent and Young Adult Oncology
SN - 2156-5333
IS - 1
ER -