Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care

Sapna Kaul, Rochelle R. Smits-Seemann, Eduardo R. Zamora, Holly Spraker-Perlman, Kevin J. Boyle, Anne C. Kirchhoff

Research output: Contribution to journalArticle

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Abstract

Purpose: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. Methods: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. Results: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. Conclusion: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.

Original languageEnglish (US)
Pages (from-to)127-133
Number of pages7
JournalJournal of Adolescent and Young Adult Oncology
Volume6
Issue number1
DOIs
StatePublished - Mar 1 2017

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Survivors
Young Adult
Focus Groups
Neoplasms
Aftercare
Therapeutics
Confidence Intervals
Health
Registries
Demography
Interviews
Costs and Cost Analysis

Keywords

  • adolescent and young adult
  • cancer
  • follow-up care
  • survivors
  • values
  • willingness to pay

ASJC Scopus subject areas

  • Oncology
  • Pediatrics, Perinatology, and Child Health

Cite this

Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care. / Kaul, Sapna; Smits-Seemann, Rochelle R.; Zamora, Eduardo R.; Spraker-Perlman, Holly; Boyle, Kevin J.; Kirchhoff, Anne C.

In: Journal of Adolescent and Young Adult Oncology, Vol. 6, No. 1, 01.03.2017, p. 127-133.

Research output: Contribution to journalArticle

Kaul, Sapna ; Smits-Seemann, Rochelle R. ; Zamora, Eduardo R. ; Spraker-Perlman, Holly ; Boyle, Kevin J. ; Kirchhoff, Anne C. / Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care. In: Journal of Adolescent and Young Adult Oncology. 2017 ; Vol. 6, No. 1. pp. 127-133.
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