Adolescent and Young Adult Cancer Survivors' Valuation of Post-Treatment Recommended Care

Sapna Kaul, Rochelle R. Smits-Seemann, Eduardo R. Zamora, Holly Spraker-Perlman, Kevin J. Boyle, Anne C. Kirchhoff

    Research output: Contribution to journalArticlepeer-review

    5 Scopus citations

    Abstract

    Purpose: Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service. Methods: Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question. Results: Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP. Conclusion: Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.

    Original languageEnglish (US)
    Pages (from-to)127-133
    Number of pages7
    JournalJournal of Adolescent and Young Adult Oncology
    Volume6
    Issue number1
    DOIs
    StatePublished - Mar 2017

    Keywords

    • adolescent and young adult
    • cancer
    • follow-up care
    • survivors
    • values
    • willingness to pay

    ASJC Scopus subject areas

    • Pediatrics, Perinatology, and Child Health
    • Oncology

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