Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes

do they agree or disagree?

Walter Meyer, Austin F. Lee, Lewis E. Kazis, Nien Chen Li, Robert L. Sheridan, David Herndon, Michelle I. Hinson, Theresa K. Stubbs, Richard J. Kagan, Tina L. Palmieri, Ronald G. Tompkins, Benchmarking Study Working Group Multi-Center Benchmarking Study Working Group

Research output: Contribution to journalArticle

17 Citations (Scopus)

Abstract

This study analyzed the concordance of parent and child in assessing the progress of child and adolescent survivors of burn injuries using health outcomes. The American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) was completed by 355 pairs of parents and their 11- to 18-year-old adolescents who experienced a burn injury. These patients completed BOQ child/parent questionnaire pairs at four regional pediatric burn care centers nationally during the first 4 years postburn. The BOQ includes 12 scales that range from physical to emotional health. Predicted recovery curves for each scale (dependent variable) were obtained from generalized linear models, with the independent variables the logarithmic transformation of the time since burn and parent/child as the principal indicator. Covariates included sociodemographics and clinical severity. Mean differences between the parent and adolescent scale scores were small, with few insignificant exceptions. Most of the recovery curves over time for the parent and the adolescent were undifferentiated, except for the outcome of appearance where the adolescent rating was better than that of the parent (p < 0.01) and itch was judged as worse than that of the parent (p < 0.01). School reentry was rated higher by the adolescent initially (p < 0.001), but after 18 months, it was rated higher by the parent (p = 0.012). Analysis of the BOQ completed by adolescents and their parents reveal similar estimates of recovery following the burn injury. These results suggest that the adolescent's reported outcomes can be used interchangeably with the parent's assessments, with the exception of appearance, itch, and school reentry, where there are some differences.

Original languageEnglish (US)
JournalThe journal of trauma and acute care surgery
Volume73
Issue number3 Suppl 2
StatePublished - Sep 2012

Fingerprint

Survivors
Parents
Wounds and Injuries
Burn Units
Health
Linear Models
Surveys and Questionnaires
Pediatrics

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Meyer, W., Lee, A. F., Kazis, L. E., Li, N. C., Sheridan, R. L., Herndon, D., ... Multi-Center Benchmarking Study Working Group, B. S. W. G. (2012). Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes: do they agree or disagree? The journal of trauma and acute care surgery, 73(3 Suppl 2).

Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes : do they agree or disagree? / Meyer, Walter; Lee, Austin F.; Kazis, Lewis E.; Li, Nien Chen; Sheridan, Robert L.; Herndon, David; Hinson, Michelle I.; Stubbs, Theresa K.; Kagan, Richard J.; Palmieri, Tina L.; Tompkins, Ronald G.; Multi-Center Benchmarking Study Working Group, Benchmarking Study Working Group.

In: The journal of trauma and acute care surgery, Vol. 73, No. 3 Suppl 2, 09.2012.

Research output: Contribution to journalArticle

Meyer, W, Lee, AF, Kazis, LE, Li, NC, Sheridan, RL, Herndon, D, Hinson, MI, Stubbs, TK, Kagan, RJ, Palmieri, TL, Tompkins, RG & Multi-Center Benchmarking Study Working Group, BSWG 2012, 'Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes: do they agree or disagree?', The journal of trauma and acute care surgery, vol. 73, no. 3 Suppl 2.
Meyer, Walter ; Lee, Austin F. ; Kazis, Lewis E. ; Li, Nien Chen ; Sheridan, Robert L. ; Herndon, David ; Hinson, Michelle I. ; Stubbs, Theresa K. ; Kagan, Richard J. ; Palmieri, Tina L. ; Tompkins, Ronald G. ; Multi-Center Benchmarking Study Working Group, Benchmarking Study Working Group. / Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes : do they agree or disagree?. In: The journal of trauma and acute care surgery. 2012 ; Vol. 73, No. 3 Suppl 2.
@article{f9f6e4eb5f9641feaa6fe14765366cf8,
title = "Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes: do they agree or disagree?",
abstract = "This study analyzed the concordance of parent and child in assessing the progress of child and adolescent survivors of burn injuries using health outcomes. The American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) was completed by 355 pairs of parents and their 11- to 18-year-old adolescents who experienced a burn injury. These patients completed BOQ child/parent questionnaire pairs at four regional pediatric burn care centers nationally during the first 4 years postburn. The BOQ includes 12 scales that range from physical to emotional health. Predicted recovery curves for each scale (dependent variable) were obtained from generalized linear models, with the independent variables the logarithmic transformation of the time since burn and parent/child as the principal indicator. Covariates included sociodemographics and clinical severity. Mean differences between the parent and adolescent scale scores were small, with few insignificant exceptions. Most of the recovery curves over time for the parent and the adolescent were undifferentiated, except for the outcome of appearance where the adolescent rating was better than that of the parent (p < 0.01) and itch was judged as worse than that of the parent (p < 0.01). School reentry was rated higher by the adolescent initially (p < 0.001), but after 18 months, it was rated higher by the parent (p = 0.012). Analysis of the BOQ completed by adolescents and their parents reveal similar estimates of recovery following the burn injury. These results suggest that the adolescent's reported outcomes can be used interchangeably with the parent's assessments, with the exception of appearance, itch, and school reentry, where there are some differences.",
author = "Walter Meyer and Lee, {Austin F.} and Kazis, {Lewis E.} and Li, {Nien Chen} and Sheridan, {Robert L.} and David Herndon and Hinson, {Michelle I.} and Stubbs, {Theresa K.} and Kagan, {Richard J.} and Palmieri, {Tina L.} and Tompkins, {Ronald G.} and {Multi-Center Benchmarking Study Working Group}, {Benchmarking Study Working Group}",
year = "2012",
month = "9",
language = "English (US)",
volume = "73",
journal = "Journal of Trauma and Acute Care Surgery",
issn = "2163-0755",
publisher = "Lippincott Williams and Wilkins",
number = "3 Suppl 2",

}

TY - JOUR

T1 - Adolescent survivors of burn injuries and their parents' perceptions of recovery outcomes

T2 - do they agree or disagree?

AU - Meyer, Walter

AU - Lee, Austin F.

AU - Kazis, Lewis E.

AU - Li, Nien Chen

AU - Sheridan, Robert L.

AU - Herndon, David

AU - Hinson, Michelle I.

AU - Stubbs, Theresa K.

AU - Kagan, Richard J.

AU - Palmieri, Tina L.

AU - Tompkins, Ronald G.

AU - Multi-Center Benchmarking Study Working Group, Benchmarking Study Working Group

PY - 2012/9

Y1 - 2012/9

N2 - This study analyzed the concordance of parent and child in assessing the progress of child and adolescent survivors of burn injuries using health outcomes. The American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) was completed by 355 pairs of parents and their 11- to 18-year-old adolescents who experienced a burn injury. These patients completed BOQ child/parent questionnaire pairs at four regional pediatric burn care centers nationally during the first 4 years postburn. The BOQ includes 12 scales that range from physical to emotional health. Predicted recovery curves for each scale (dependent variable) were obtained from generalized linear models, with the independent variables the logarithmic transformation of the time since burn and parent/child as the principal indicator. Covariates included sociodemographics and clinical severity. Mean differences between the parent and adolescent scale scores were small, with few insignificant exceptions. Most of the recovery curves over time for the parent and the adolescent were undifferentiated, except for the outcome of appearance where the adolescent rating was better than that of the parent (p < 0.01) and itch was judged as worse than that of the parent (p < 0.01). School reentry was rated higher by the adolescent initially (p < 0.001), but after 18 months, it was rated higher by the parent (p = 0.012). Analysis of the BOQ completed by adolescents and their parents reveal similar estimates of recovery following the burn injury. These results suggest that the adolescent's reported outcomes can be used interchangeably with the parent's assessments, with the exception of appearance, itch, and school reentry, where there are some differences.

AB - This study analyzed the concordance of parent and child in assessing the progress of child and adolescent survivors of burn injuries using health outcomes. The American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire (BOQ) was completed by 355 pairs of parents and their 11- to 18-year-old adolescents who experienced a burn injury. These patients completed BOQ child/parent questionnaire pairs at four regional pediatric burn care centers nationally during the first 4 years postburn. The BOQ includes 12 scales that range from physical to emotional health. Predicted recovery curves for each scale (dependent variable) were obtained from generalized linear models, with the independent variables the logarithmic transformation of the time since burn and parent/child as the principal indicator. Covariates included sociodemographics and clinical severity. Mean differences between the parent and adolescent scale scores were small, with few insignificant exceptions. Most of the recovery curves over time for the parent and the adolescent were undifferentiated, except for the outcome of appearance where the adolescent rating was better than that of the parent (p < 0.01) and itch was judged as worse than that of the parent (p < 0.01). School reentry was rated higher by the adolescent initially (p < 0.001), but after 18 months, it was rated higher by the parent (p = 0.012). Analysis of the BOQ completed by adolescents and their parents reveal similar estimates of recovery following the burn injury. These results suggest that the adolescent's reported outcomes can be used interchangeably with the parent's assessments, with the exception of appearance, itch, and school reentry, where there are some differences.

UR - http://www.scopus.com/inward/record.url?scp=84868235359&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84868235359&partnerID=8YFLogxK

M3 - Article

VL - 73

JO - Journal of Trauma and Acute Care Surgery

JF - Journal of Trauma and Acute Care Surgery

SN - 2163-0755

IS - 3 Suppl 2

ER -