Advancing Dialogue About Consent and Molecular HIV Surveillance in the United States: Four Proposals Following a Federal Advisory Panel's Call for Major Reforms

Stephen Molldrem, Anthony K.J. Smith, A. L.E.X.A.N.D.E.R. McCLELLAND

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

Policy Points Molecular HIV surveillance and cluster detection and response (MHS/CDR) programs have been a core public health activity in the United States since 2018 and are the “fourth pillar” of the Ending the HIV Epidemic initiative launched in 2019. MHS/CDR has caused controversy, including calls for a moratorium from networks of people living with HIV. In October 2022, the Presidential Advisory Council on HIV/AIDS (PACHA) adopted a resolution calling for major reforms. We analyze the policy landscape and present four proposals to federal stakeholders pertaining to PACHA's recommendations about incorporating opt-outs and plain-language notifications into MHS/CDR programs.

Original languageEnglish (US)
Pages (from-to)1033-1046
Number of pages14
JournalMilbank Quarterly
Volume101
Issue number4
Early online dateJun 28 2023
DOIs
StateE-pub ahead of print - Jun 28 2023

Keywords

  • Ending the HIV Epidemic
  • cluster detection and response
  • molecular HIV surveillance
  • public health ethics

ASJC Scopus subject areas

  • Health Policy
  • Public Health, Environmental and Occupational Health

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