Abstract
Purpose: Though the need for risk-based follow-up care for survivors of adolescent and young adult (AYA) cancer has been documented, survivors often report forgoing recommended care due to cost. We sought to understand whether additional barriers to follow-up care exist for AYA survivors. Methods: We recruited survivors who were diagnosed with cancer between the ages of 15 and 39 using the Utah Cancer Registry (UCR). Overall, 28 survivors participated in 6 focus groups held between March and May 2015 in Salt Lake City and St. George, UT. Focus group discussions focused on the reasons survivors may or may not attend recommended medical visits after completing therapy. Results: Survivors reported myriad barriers to follow-up medical visits, including lack of clear provider recommendation, fear of recurrent cancer diagnosis, wishing to move on with life, competing life responsibilities due to work and children, and not perceiving the need for a visit due to lack of symptoms. Conclusions: Though cost likely plays a major part in follow-up care adherence for survivors of AYA cancer, in our focus groups, participants indicated there were many other psychosocial and logistic barriers to care. Such factors play an important role in the day-to-day lives of survivors and are critical in medical decision-making. Implications for cancer survivors: Several factors impede follow-up care adherence for survivors of AYA cancer that are amenable to interventions, including clearer provider recommendations, flexible appointment times, and childcare availability in clinics.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1-7 |
| Number of pages | 7 |
| Journal | Journal of Cancer Survivorship |
| DOIs | |
| State | Accepted/In press - Aug 31 2016 |
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Keywords
- AYA cancer
- Barriers to care
- Risk-based follow-up care
- Survivorship
ASJC Scopus subject areas
- Oncology
- Oncology(nursing)
Cite this
Barriers to follow-up care among survivors of adolescent and young adult cancer. / Smits-Seemann, Rochelle R.; Kaul, Sapna; Zamora, Eduardo R.; Wu, Yelena P.; Kirchhoff, Anne C.
In: Journal of Cancer Survivorship, 31.08.2016, p. 1-7.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Barriers to follow-up care among survivors of adolescent and young adult cancer
AU - Smits-Seemann, Rochelle R.
AU - Kaul, Sapna
AU - Zamora, Eduardo R.
AU - Wu, Yelena P.
AU - Kirchhoff, Anne C.
PY - 2016/8/31
Y1 - 2016/8/31
N2 - Purpose: Though the need for risk-based follow-up care for survivors of adolescent and young adult (AYA) cancer has been documented, survivors often report forgoing recommended care due to cost. We sought to understand whether additional barriers to follow-up care exist for AYA survivors. Methods: We recruited survivors who were diagnosed with cancer between the ages of 15 and 39 using the Utah Cancer Registry (UCR). Overall, 28 survivors participated in 6 focus groups held between March and May 2015 in Salt Lake City and St. George, UT. Focus group discussions focused on the reasons survivors may or may not attend recommended medical visits after completing therapy. Results: Survivors reported myriad barriers to follow-up medical visits, including lack of clear provider recommendation, fear of recurrent cancer diagnosis, wishing to move on with life, competing life responsibilities due to work and children, and not perceiving the need for a visit due to lack of symptoms. Conclusions: Though cost likely plays a major part in follow-up care adherence for survivors of AYA cancer, in our focus groups, participants indicated there were many other psychosocial and logistic barriers to care. Such factors play an important role in the day-to-day lives of survivors and are critical in medical decision-making. Implications for cancer survivors: Several factors impede follow-up care adherence for survivors of AYA cancer that are amenable to interventions, including clearer provider recommendations, flexible appointment times, and childcare availability in clinics.
AB - Purpose: Though the need for risk-based follow-up care for survivors of adolescent and young adult (AYA) cancer has been documented, survivors often report forgoing recommended care due to cost. We sought to understand whether additional barriers to follow-up care exist for AYA survivors. Methods: We recruited survivors who were diagnosed with cancer between the ages of 15 and 39 using the Utah Cancer Registry (UCR). Overall, 28 survivors participated in 6 focus groups held between March and May 2015 in Salt Lake City and St. George, UT. Focus group discussions focused on the reasons survivors may or may not attend recommended medical visits after completing therapy. Results: Survivors reported myriad barriers to follow-up medical visits, including lack of clear provider recommendation, fear of recurrent cancer diagnosis, wishing to move on with life, competing life responsibilities due to work and children, and not perceiving the need for a visit due to lack of symptoms. Conclusions: Though cost likely plays a major part in follow-up care adherence for survivors of AYA cancer, in our focus groups, participants indicated there were many other psychosocial and logistic barriers to care. Such factors play an important role in the day-to-day lives of survivors and are critical in medical decision-making. Implications for cancer survivors: Several factors impede follow-up care adherence for survivors of AYA cancer that are amenable to interventions, including clearer provider recommendations, flexible appointment times, and childcare availability in clinics.
KW - AYA cancer
KW - Barriers to care
KW - Risk-based follow-up care
KW - Survivorship
UR - http://www.scopus.com/inward/record.url?scp=84984855497&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84984855497&partnerID=8YFLogxK
U2 - 10.1007/s11764-016-0570-3
DO - 10.1007/s11764-016-0570-3
M3 - Article
C2 - 27582007
AN - SCOPUS:84984855497
SP - 1
EP - 7
JO - Journal of Cancer Survivorship
JF - Journal of Cancer Survivorship
SN - 1932-2259
ER -