Being discharged from hospice alive: The lived experience of patients and families

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

Background: Approximately 259,000 patients were discharged alive from U.S. hospices in 2010. There is a paucity of research describing the experiences of these individuals and their family members. Objective: The study objective was to explore the experiences of adults discharged from a hospice program due to decertification related to ineligibility or extended prognosis, from the perspective of the individual and his or her adult family members. Research questions were, How do participants perceive and describe (1) the experience of being discharged alive from hospice, and (2) their quality of life after a live hospice discharge? Methods: A transcendental phenomenological design guided this study. Purposive, snowball sampling was used to recruit 12 volunteers, aged 35-92 years, who had experienced live hospice discharge due to decertification. Data collection included open-ended interviews and journals. Results: Findings included two primary themes: suffering "AS..." and the paradox of hospice discharge. These primary themes were supported by 12 subthemes: abandonment, unanswered questions, loss of security, loneliness, uncertainty, anger and frustration, physical decline, bearing exhaustive witness, having and needing support, mixed feelings, not dying fast enough, and hospice equals life. Conclusion: Understanding this experience may enhance understanding and aid health care providers to anticipate the unique needs of the hospice population.

Original languageEnglish (US)
Pages (from-to)495-499
Number of pages5
JournalJournal of Palliative Medicine
Volume18
Issue number6
DOIs
StatePublished - Jun 1 2015

Fingerprint

Hospices
Hospice Care
Loneliness
Frustration
Anger
Research
Health Personnel
Uncertainty
Volunteers
Emotions
Quality of Life
Interviews
Population

ASJC Scopus subject areas

  • Medicine(all)
  • Anesthesiology and Pain Medicine
  • Nursing(all)

Cite this

Being discharged from hospice alive : The lived experience of patients and families. / Watson Campbell, Rebeka.

In: Journal of Palliative Medicine, Vol. 18, No. 6, 01.06.2015, p. 495-499.

Research output: Contribution to journalArticle

@article{da0dde08df1f4173bb2d99b3b76171dd,
title = "Being discharged from hospice alive: The lived experience of patients and families",
abstract = "Background: Approximately 259,000 patients were discharged alive from U.S. hospices in 2010. There is a paucity of research describing the experiences of these individuals and their family members. Objective: The study objective was to explore the experiences of adults discharged from a hospice program due to decertification related to ineligibility or extended prognosis, from the perspective of the individual and his or her adult family members. Research questions were, How do participants perceive and describe (1) the experience of being discharged alive from hospice, and (2) their quality of life after a live hospice discharge? Methods: A transcendental phenomenological design guided this study. Purposive, snowball sampling was used to recruit 12 volunteers, aged 35-92 years, who had experienced live hospice discharge due to decertification. Data collection included open-ended interviews and journals. Results: Findings included two primary themes: suffering {"}AS...{"} and the paradox of hospice discharge. These primary themes were supported by 12 subthemes: abandonment, unanswered questions, loss of security, loneliness, uncertainty, anger and frustration, physical decline, bearing exhaustive witness, having and needing support, mixed feelings, not dying fast enough, and hospice equals life. Conclusion: Understanding this experience may enhance understanding and aid health care providers to anticipate the unique needs of the hospice population.",
author = "{Watson Campbell}, Rebeka",
year = "2015",
month = "6",
day = "1",
doi = "10.1089/jpm.2014.0228",
language = "English (US)",
volume = "18",
pages = "495--499",
journal = "Journal of Palliative Medicine",
issn = "1096-6218",
publisher = "Mary Ann Liebert Inc.",
number = "6",

}

TY - JOUR

T1 - Being discharged from hospice alive

T2 - The lived experience of patients and families

AU - Watson Campbell, Rebeka

PY - 2015/6/1

Y1 - 2015/6/1

N2 - Background: Approximately 259,000 patients were discharged alive from U.S. hospices in 2010. There is a paucity of research describing the experiences of these individuals and their family members. Objective: The study objective was to explore the experiences of adults discharged from a hospice program due to decertification related to ineligibility or extended prognosis, from the perspective of the individual and his or her adult family members. Research questions were, How do participants perceive and describe (1) the experience of being discharged alive from hospice, and (2) their quality of life after a live hospice discharge? Methods: A transcendental phenomenological design guided this study. Purposive, snowball sampling was used to recruit 12 volunteers, aged 35-92 years, who had experienced live hospice discharge due to decertification. Data collection included open-ended interviews and journals. Results: Findings included two primary themes: suffering "AS..." and the paradox of hospice discharge. These primary themes were supported by 12 subthemes: abandonment, unanswered questions, loss of security, loneliness, uncertainty, anger and frustration, physical decline, bearing exhaustive witness, having and needing support, mixed feelings, not dying fast enough, and hospice equals life. Conclusion: Understanding this experience may enhance understanding and aid health care providers to anticipate the unique needs of the hospice population.

AB - Background: Approximately 259,000 patients were discharged alive from U.S. hospices in 2010. There is a paucity of research describing the experiences of these individuals and their family members. Objective: The study objective was to explore the experiences of adults discharged from a hospice program due to decertification related to ineligibility or extended prognosis, from the perspective of the individual and his or her adult family members. Research questions were, How do participants perceive and describe (1) the experience of being discharged alive from hospice, and (2) their quality of life after a live hospice discharge? Methods: A transcendental phenomenological design guided this study. Purposive, snowball sampling was used to recruit 12 volunteers, aged 35-92 years, who had experienced live hospice discharge due to decertification. Data collection included open-ended interviews and journals. Results: Findings included two primary themes: suffering "AS..." and the paradox of hospice discharge. These primary themes were supported by 12 subthemes: abandonment, unanswered questions, loss of security, loneliness, uncertainty, anger and frustration, physical decline, bearing exhaustive witness, having and needing support, mixed feelings, not dying fast enough, and hospice equals life. Conclusion: Understanding this experience may enhance understanding and aid health care providers to anticipate the unique needs of the hospice population.

UR - http://www.scopus.com/inward/record.url?scp=84929584681&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84929584681&partnerID=8YFLogxK

U2 - 10.1089/jpm.2014.0228

DO - 10.1089/jpm.2014.0228

M3 - Article

C2 - 25719562

AN - SCOPUS:84929584681

VL - 18

SP - 495

EP - 499

JO - Journal of Palliative Medicine

JF - Journal of Palliative Medicine

SN - 1096-6218

IS - 6

ER -