Abstract
Introduction: Research progress on neurocognitive disorders requires donation of both healthy and diseased brains. Here, we describe attitudes toward brain donation among a large community sample in Florida. Methods: HealthStreet, a community engagement program at the University of Florida, used community health workers to assess community attitudes toward research participation, including brain donation. Results: Over 60% of people, primarily Caucasian and employed, indicated that they would be likely or somewhat likely to donate their brain for research. Those who would be willing to donate were also more likely to be willing to participate in other research studies and to have participated in research. Discussion: Brain donation will add to the science of disorders of aging, including accurate diagnoses and validation of in vivo biomarkers. Increasing willingness to donate is a first step toward donation. Community populations are willing; community health workers can educate others about the need for this initiative in communities.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 267-272 |
| Number of pages | 6 |
| Journal | Alzheimer's and Dementia |
| Volume | 15 |
| Issue number | 2 |
| DOIs | |
| State | Published - Feb 1 2019 |
| Externally published | Yes |
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Keywords
- Alzheimer's
- Brain donation
- Community health worker
- Dementia
- Epidemiology
- Public health
- Research perceptions
ASJC Scopus subject areas
- Epidemiology
- Health Policy
- Developmental Neuroscience
- Clinical Neurology
- Geriatrics and Gerontology
- Cellular and Molecular Neuroscience
- Psychiatry and Mental health
Cite this
Community perceptions related to brain donation : Evidence for intervention. / Striley, Catherine W.; Milani, Sadaf; Kwiatkowski, Evan; DeKosky, Steven T.; Cottler, Linda B.
In: Alzheimer's and Dementia, Vol. 15, No. 2, 01.02.2019, p. 267-272.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Community perceptions related to brain donation
T2 - Evidence for intervention
AU - Striley, Catherine W.
AU - Milani, Sadaf
AU - Kwiatkowski, Evan
AU - DeKosky, Steven T.
AU - Cottler, Linda B.
PY - 2019/2/1
Y1 - 2019/2/1
N2 - Introduction: Research progress on neurocognitive disorders requires donation of both healthy and diseased brains. Here, we describe attitudes toward brain donation among a large community sample in Florida. Methods: HealthStreet, a community engagement program at the University of Florida, used community health workers to assess community attitudes toward research participation, including brain donation. Results: Over 60% of people, primarily Caucasian and employed, indicated that they would be likely or somewhat likely to donate their brain for research. Those who would be willing to donate were also more likely to be willing to participate in other research studies and to have participated in research. Discussion: Brain donation will add to the science of disorders of aging, including accurate diagnoses and validation of in vivo biomarkers. Increasing willingness to donate is a first step toward donation. Community populations are willing; community health workers can educate others about the need for this initiative in communities.
AB - Introduction: Research progress on neurocognitive disorders requires donation of both healthy and diseased brains. Here, we describe attitudes toward brain donation among a large community sample in Florida. Methods: HealthStreet, a community engagement program at the University of Florida, used community health workers to assess community attitudes toward research participation, including brain donation. Results: Over 60% of people, primarily Caucasian and employed, indicated that they would be likely or somewhat likely to donate their brain for research. Those who would be willing to donate were also more likely to be willing to participate in other research studies and to have participated in research. Discussion: Brain donation will add to the science of disorders of aging, including accurate diagnoses and validation of in vivo biomarkers. Increasing willingness to donate is a first step toward donation. Community populations are willing; community health workers can educate others about the need for this initiative in communities.
KW - Alzheimer's
KW - Brain donation
KW - Community health worker
KW - Dementia
KW - Epidemiology
KW - Public health
KW - Research perceptions
UR - http://www.scopus.com/inward/record.url?scp=85057376521&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85057376521&partnerID=8YFLogxK
U2 - 10.1016/j.jalz.2018.09.005
DO - 10.1016/j.jalz.2018.09.005
M3 - Article
VL - 15
SP - 267
EP - 272
JO - Alzheimer's and Dementia
JF - Alzheimer's and Dementia
SN - 1552-5260
IS - 2
ER -