TY - JOUR
T1 - Fertility Preservation for a Teenager with Differences (Disorders) of Sex Development
T2 - An Ethics Case Study
AU - Campo-Engelstein, Lisa
AU - Chen, Diane
AU - Baratz, Arlene B.
AU - Johnson, Emilie K.
AU - Finlayson, Courtney
PY - 2019/6/1
Y1 - 2019/6/1
N2 - Fertility preservation has become more common for various populations, including oncology patients, transgender individuals, and women who are concerned about age-related infertility. Little attention has been paid to fertility preservation for patients with differences/disorders of sex development (DSD). Our goal in this article is to address specific ethical considerations that are unique to this patient population. To this end, we present a hypothetical DSD case. We then explore ethical considerations related to patient's age, risk of cancer, concern about genetic transmission of a DSD condition to children, co-occurring gender dysphoria, and access to experimental fertility preservation procedures. Given the limitations of current technologies, we recommend offering fertility preservation to individuals living with DSD using an informed decision-making approach that instills realistic expectations and minimizes the potential for false hope. Finally, we conclude with practical recommendations for this case based on the ethical considerations.
AB - Fertility preservation has become more common for various populations, including oncology patients, transgender individuals, and women who are concerned about age-related infertility. Little attention has been paid to fertility preservation for patients with differences/disorders of sex development (DSD). Our goal in this article is to address specific ethical considerations that are unique to this patient population. To this end, we present a hypothetical DSD case. We then explore ethical considerations related to patient's age, risk of cancer, concern about genetic transmission of a DSD condition to children, co-occurring gender dysphoria, and access to experimental fertility preservation procedures. Given the limitations of current technologies, we recommend offering fertility preservation to individuals living with DSD using an informed decision-making approach that instills realistic expectations and minimizes the potential for false hope. Finally, we conclude with practical recommendations for this case based on the ethical considerations.
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M3 - Article
C2 - 31188791
AN - SCOPUS:85068158292
SN - 1046-7890
VL - 30
SP - 143
EP - 153
JO - The Journal of clinical ethics
JF - The Journal of clinical ethics
IS - 2
ER -