Generating Rasch-based activity of daily living measures from the Spinal Cord Injury Longitudinal Aging Study

C. Y. Li, C. A. Velozo, I. Hong, C. Li, J. C. Newman, J. S. Krause

Research output: Contribution to journalArticlepeer-review

Abstract

Study design: Retrospective Longitudinal Study. Objectives: (1) To determine whether the Spinal Cord Injury Activities of Daily Living (SCI-ADL) measure shows adequate item-level and precision psychometrics; (2) to investigate whether the SCI-ADL measure effectively detects ADL changes across time; (3) to describe self-care task(s) participants can and cannot do across time. Setting: Two Midwestern hospitals and 1 Southeastern specialty hospital in 1993. Methods: All participants were adults with traumatic SCI of at least 1-year duration at enrollment. We used 20-year (1993-2013) retrospective longitudinal data and categorized participants into three injury levels: C1-C4 (cervical; n=50), C5-C8 (n=126) and T1-S5 (thoracic, lumbar and sacral; n=168). We first examined psychometrics of the SCI-ADL with factor and Rasch analyses; then we investigated longitudinal change of SCI-ADL scores at three time points over 20 years (1993, 2003 and 2013) using generalized linear mixed modeling and post hoc analyses. Results: The SCI-ADL measure demonstrated unidimensionality, person strata of 2.9, high Cronbach's α (0.93) and fair person reliability (0.76). T1-S5 had the highest measures, following C5-C8 and C1-C4 at three time points (Po0.05). The C1-C4 and T1-S5 groups showed significant decreases from 2003 to 2013; however, none of the three groups showed significant differences from 1993 to 2003 (Po0.05). Conclusions: The SCI-ADL measure could detect longitudinal ADL changes of the population with SCI across time. The C1-C4 group decreased the most in ADLs, indicating higher need of long-term services and rehabilitation.

Original languageEnglish (US)
Pages (from-to)14-21
Number of pages8
JournalSpinal Cord
Volume56
Issue number1
DOIs
StatePublished - 2018

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology

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