Holding a Place: Parents' Lives Following Removal of Infant Life Support

Debra Armentrout

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

There are 34 000 neonatal deaths occurring annually in the United States, many of which occur after removal of life support. The purposes of this grounded theory study were to explore and describe parents' experiences with making the decision to discontinue life support for their critically ill infant and to identify the process that allows them to then move forward with their lives after the infant's death. Data were generated by face-to-face and telephone interviews with a theoretical sample of 15 parents. Three thematic concepts with subthemes emerged: Facing the Decision (No Real Choice, Time with the Infant), Life Goes On (Listen to Your Heart, An Abiding Loss, Not Left Out), and Lives Forever Changed (New Perspectives, Preparing to Meet Again). The substantive theory, The Process of Holding a Place, describes the basic social process parents used to carry their deceased infant forward with them in their daily lives.

Original languageEnglish (US)
JournalNewborn and Infant Nursing Reviews
Volume7
Issue number1
DOIs
StatePublished - Mar 2007
Externally publishedYes

Fingerprint

Parents
Critical Illness
Decision Making
Interviews
Infant Death
Perinatal Death
Grounded Theory

Keywords

  • Neonatal life support
  • Newborn death
  • Perinatal loss

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Holding a Place : Parents' Lives Following Removal of Infant Life Support. / Armentrout, Debra.

In: Newborn and Infant Nursing Reviews, Vol. 7, No. 1, 03.2007.

Research output: Contribution to journalArticle

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