Infant with trisomy 18 and hypoplastic left heart syndrome

Stephanie Kukora, Janice Firn, Naomi Laventhal, Christian Vercler, Bryanna Moore, John D. Lantos

Research output: Contribution to journalArticlepeer-review

10 Scopus citations


We present a case in which a fetal diagnosis of complex congenital heart disease and trisomy 18 led to a series of decisions for an infant who was critically ill. The parents wanted everything done. The surgeons believed that surgery would be futile. The parents publicized the case on social media, which led to publicity and pressure on the hospital. The case reveals the intersection of parental values, clinical judgments, ethics consultation, insurance company decisions about reimbursement, and social media publicity. Together, these factors complicate the already delicate ethical deliberations and decisions.

Original languageEnglish (US)
Article numberY
Issue number5
StatePublished - May 2019
Externally publishedYes

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health


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