Life support decisions for children

What do parents value?

Mark Stephen Kirschbaum

Research output: Contribution to journalArticle

43 Citations (Scopus)

Abstract

This investigation answered the question, What meaning do parents give to the decision to authorize or to withdraw or forgo authorization of life-sustaining treatment for a child? Using an exploratory design, the author interviewed 20 families who had faced this decision in the prior 6 to 12 months. From content analysis, parents' essential meaning was experienced through their sense of self, their being, and an ethic of responsibility. Parents' decisions reflected values regarding the eight key themes of life, pain and suffering, quality of life, not self, respect for person or best interest, family, faith and nature, and technology.

Original languageEnglish (US)
Pages (from-to)51-71
Number of pages21
JournalAdvances in Nursing Science
Volume19
Issue number1
StatePublished - Sep 1996
Externally publishedYes

Fingerprint

Parents
Psychological Stress
Ethics
Quality of Life
Technology
Pain
Therapeutics

Keywords

  • Ethics
  • Life support withdrawal
  • Parents
  • Phenomenology
  • Values

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Life support decisions for children : What do parents value? / Kirschbaum, Mark Stephen.

In: Advances in Nursing Science, Vol. 19, No. 1, 09.1996, p. 51-71.

Research output: Contribution to journalArticle

Kirschbaum, Mark Stephen. / Life support decisions for children : What do parents value?. In: Advances in Nursing Science. 1996 ; Vol. 19, No. 1. pp. 51-71.
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