Life support decisions for children: What do parents value?

Mark Stephen Kirschbaum

Research output: Contribution to journalArticlepeer-review

50 Scopus citations


This investigation answered the question, What meaning do parents give to the decision to authorize or to withdraw or forgo authorization of life-sustaining treatment for a child? Using an exploratory design, the author interviewed 20 families who had faced this decision in the prior 6 to 12 months. From content analysis, parents' essential meaning was experienced through their sense of self, their being, and an ethic of responsibility. Parents' decisions reflected values regarding the eight key themes of life, pain and suffering, quality of life, not self, respect for person or best interest, family, faith and nature, and technology.

Original languageEnglish (US)
Pages (from-to)51-71
Number of pages21
JournalAdvances in Nursing Science
Issue number1
StatePublished - Sep 1996


  • Ethics
  • Life support withdrawal
  • Parents
  • Phenomenology
  • Values

ASJC Scopus subject areas

  • Nursing(all)


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