Abstract
Research findings reported in the literature about making life and death decisions for critically ill infants in the neonatal ICU focus primarily on the experiences of health care providers and the ethical dilemmas surrounding these decisions. Fewer studies focus on parents' experiences in making decisions about discontinuing life support for their infant, and even fewer address what life is like for parents following the deaths of their infants. This article expands on the concepts identified by parents as factors in their decision making and on the facilitators and barriers parents faced, and continue to face, in their grieving process.
Original language | English (US) |
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Pages (from-to) | 253-265 |
Number of pages | 13 |
Journal | Critical care nursing clinics of North America |
Volume | 21 |
Issue number | 2 |
DOIs | |
State | Published - Jun 2009 |
Keywords
- Grounded theory
- Neonatal death
- Perinatal loss
- Removal of neonatal life support
ASJC Scopus subject areas
- Critical Care