Living with Grief Following Removal of Infant Life Support: Parents' Perspectives

Debra Armentrout

    Research output: Contribution to journalReview articlepeer-review

    26 Scopus citations


    Research findings reported in the literature about making life and death decisions for critically ill infants in the neonatal ICU focus primarily on the experiences of health care providers and the ethical dilemmas surrounding these decisions. Fewer studies focus on parents' experiences in making decisions about discontinuing life support for their infant, and even fewer address what life is like for parents following the deaths of their infants. This article expands on the concepts identified by parents as factors in their decision making and on the facilitators and barriers parents faced, and continue to face, in their grieving process.

    Original languageEnglish (US)
    Pages (from-to)253-265
    Number of pages13
    JournalCritical care nursing clinics of North America
    Issue number2
    StatePublished - Jun 2009


    • Grounded theory
    • Neonatal death
    • Perinatal loss
    • Removal of neonatal life support

    ASJC Scopus subject areas

    • Critical Care


    Dive into the research topics of 'Living with Grief Following Removal of Infant Life Support: Parents' Perspectives'. Together they form a unique fingerprint.

    Cite this