Navigating medically complex patients through system barriers: Patients’ perspectives on care coordination

Monica Siañez, Cara Pennel, Loida Tamayo, Rebecca Wells

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Introduction: Care coordination can improve healthcare quality and reduce costs. The objective of this study was to provide a qualitative understanding of the most helpful coordination services as experienced by patients receiving these services to reduce emergent hospital use. Methods: Using case study methodology, we conducted focus group conversations with 51 care coordination patients and semi-structured interviews with 29 care coordinators at nine sites throughout Texas. The study team performed constant comparative analysis, beginning with start codes based on prior research. Results: On average, focus group participants were 47 years old. The majority of participants reported a high school or General Equivalency Diploma level of education or less (84%), an annual income less than $14,999 (87%), and living with multiple chronic health conditions (60%). The majority (85%) of care coordinators reported backgrounds in nursing or social work. In our analysis, themes of what patients found most helpful fell under a broad social support framework (instrumental, informational, emotional, and advocacy) that care coordinators were uniquely situated to provide. Discussion: Our paper adds to existing evidence by providing perspectives of patients with complex medical and non-medical needs about which care coordination services are most helpful. In this sample, patients with high needs describe reliance on professional sources, rather than their own social networks, to address several aspects of social support and to help meet non-health-related, as well as health-related needs. This can inform providers’ approaches to treatment as well as program administrators’ decisions about addressing and prioritizing services in care coordination programs.

Original languageEnglish (US)
Pages (from-to)160-169
Number of pages10
JournalInternational Journal of Care Coordination
Volume21
Issue number4
DOIs
StatePublished - Dec 1 2018
Externally publishedYes

Fingerprint

Social Support
Focus Groups
Quality of Health Care
Administrative Personnel
Social Work
Patient Care
Nursing
Interviews
Education
Costs and Cost Analysis
Health
Research
Therapeutics
Multiple Chronic Conditions

Keywords

  • care pathways
  • Coordination
  • multidisciplinary teamwork

ASJC Scopus subject areas

  • Leadership and Management
  • Health Policy

Cite this

Navigating medically complex patients through system barriers : Patients’ perspectives on care coordination. / Siañez, Monica; Pennel, Cara; Tamayo, Loida; Wells, Rebecca.

In: International Journal of Care Coordination, Vol. 21, No. 4, 01.12.2018, p. 160-169.

Research output: Contribution to journalArticle

@article{e1261a8ab1d54b5dbd6be7e75c9a4ff3,
title = "Navigating medically complex patients through system barriers: Patients’ perspectives on care coordination",
abstract = "Introduction: Care coordination can improve healthcare quality and reduce costs. The objective of this study was to provide a qualitative understanding of the most helpful coordination services as experienced by patients receiving these services to reduce emergent hospital use. Methods: Using case study methodology, we conducted focus group conversations with 51 care coordination patients and semi-structured interviews with 29 care coordinators at nine sites throughout Texas. The study team performed constant comparative analysis, beginning with start codes based on prior research. Results: On average, focus group participants were 47 years old. The majority of participants reported a high school or General Equivalency Diploma level of education or less (84{\%}), an annual income less than $14,999 (87{\%}), and living with multiple chronic health conditions (60{\%}). The majority (85{\%}) of care coordinators reported backgrounds in nursing or social work. In our analysis, themes of what patients found most helpful fell under a broad social support framework (instrumental, informational, emotional, and advocacy) that care coordinators were uniquely situated to provide. Discussion: Our paper adds to existing evidence by providing perspectives of patients with complex medical and non-medical needs about which care coordination services are most helpful. In this sample, patients with high needs describe reliance on professional sources, rather than their own social networks, to address several aspects of social support and to help meet non-health-related, as well as health-related needs. This can inform providers’ approaches to treatment as well as program administrators’ decisions about addressing and prioritizing services in care coordination programs.",
keywords = "care pathways, Coordination, multidisciplinary teamwork",
author = "Monica Sia{\~n}ez and Cara Pennel and Loida Tamayo and Rebecca Wells",
year = "2018",
month = "12",
day = "1",
doi = "10.1177/2053434518805781",
language = "English (US)",
volume = "21",
pages = "160--169",
journal = "International Journal of Care Coordination",
issn = "2053-4345",
publisher = "SAGE Publications Ltd",
number = "4",

}

TY - JOUR

T1 - Navigating medically complex patients through system barriers

T2 - Patients’ perspectives on care coordination

AU - Siañez, Monica

AU - Pennel, Cara

AU - Tamayo, Loida

AU - Wells, Rebecca

PY - 2018/12/1

Y1 - 2018/12/1

N2 - Introduction: Care coordination can improve healthcare quality and reduce costs. The objective of this study was to provide a qualitative understanding of the most helpful coordination services as experienced by patients receiving these services to reduce emergent hospital use. Methods: Using case study methodology, we conducted focus group conversations with 51 care coordination patients and semi-structured interviews with 29 care coordinators at nine sites throughout Texas. The study team performed constant comparative analysis, beginning with start codes based on prior research. Results: On average, focus group participants were 47 years old. The majority of participants reported a high school or General Equivalency Diploma level of education or less (84%), an annual income less than $14,999 (87%), and living with multiple chronic health conditions (60%). The majority (85%) of care coordinators reported backgrounds in nursing or social work. In our analysis, themes of what patients found most helpful fell under a broad social support framework (instrumental, informational, emotional, and advocacy) that care coordinators were uniquely situated to provide. Discussion: Our paper adds to existing evidence by providing perspectives of patients with complex medical and non-medical needs about which care coordination services are most helpful. In this sample, patients with high needs describe reliance on professional sources, rather than their own social networks, to address several aspects of social support and to help meet non-health-related, as well as health-related needs. This can inform providers’ approaches to treatment as well as program administrators’ decisions about addressing and prioritizing services in care coordination programs.

AB - Introduction: Care coordination can improve healthcare quality and reduce costs. The objective of this study was to provide a qualitative understanding of the most helpful coordination services as experienced by patients receiving these services to reduce emergent hospital use. Methods: Using case study methodology, we conducted focus group conversations with 51 care coordination patients and semi-structured interviews with 29 care coordinators at nine sites throughout Texas. The study team performed constant comparative analysis, beginning with start codes based on prior research. Results: On average, focus group participants were 47 years old. The majority of participants reported a high school or General Equivalency Diploma level of education or less (84%), an annual income less than $14,999 (87%), and living with multiple chronic health conditions (60%). The majority (85%) of care coordinators reported backgrounds in nursing or social work. In our analysis, themes of what patients found most helpful fell under a broad social support framework (instrumental, informational, emotional, and advocacy) that care coordinators were uniquely situated to provide. Discussion: Our paper adds to existing evidence by providing perspectives of patients with complex medical and non-medical needs about which care coordination services are most helpful. In this sample, patients with high needs describe reliance on professional sources, rather than their own social networks, to address several aspects of social support and to help meet non-health-related, as well as health-related needs. This can inform providers’ approaches to treatment as well as program administrators’ decisions about addressing and prioritizing services in care coordination programs.

KW - care pathways

KW - Coordination

KW - multidisciplinary teamwork

UR - http://www.scopus.com/inward/record.url?scp=85058794479&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85058794479&partnerID=8YFLogxK

U2 - 10.1177/2053434518805781

DO - 10.1177/2053434518805781

M3 - Article

AN - SCOPUS:85058794479

VL - 21

SP - 160

EP - 169

JO - International Journal of Care Coordination

JF - International Journal of Care Coordination

SN - 2053-4345

IS - 4

ER -