Perceptions of Research Participation among a Sample of Florida Residents Aged 50 and Over Reporting Dementia

Sadaf Arefi Milani, Linda B. Cottler, Catherine W. Striley

Research output: Contribution to journalArticlepeer-review

3 Scopus citations


As the population ages, the prevalence of dementia will increase. More research is needed; however, low rates of research participation, especially by older adults, hinder progress. Data came from HealthStreet, a University of Florida community engagement program in which community health workers assess community members for their health conditions. Adults 50 and over were included in these analyses; their perceptions of health research studies were assessed. Our sample had an average age of 60.5 years and 4.3% reported dementia (n = 4,881). Overall, older adults reported a high willingness to participate in research. Individuals who reported dementia had 0.64 times the odds of reporting willingness to participate in a research study that required an overnight stay, compared to those who did not report dementia (95% CI: 0.45–0.89). We report on willingness to participate in research in a more granular basis than has been previously done. Community members reporting dementia, compared to those without, were as or more likely to desire future participation in health research. However, barriers to participation remain and must be addressed.

Original languageEnglish (US)
Pages (from-to)95-107
Number of pages13
JournalAgeing International
Issue number1
StatePublished - Mar 2023


  • Alzheimer’s disease
  • Community Health
  • Dementia
  • Research Participation

ASJC Scopus subject areas

  • Health(social science)


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