Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research

A Traumatic Brain Injury Model Systems National Database Study

Angelle M. Sander, Anthony H. Lequerica, Jessica M. Ketchum, Flora M. Hammond, Kelli Williams Gary, Monique Pappadis, Elizabeth R. Felix, Douglas Johnson-Greene, Tamara Bushnik

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Objective: To investigate the contribution of race/ethnicity to retention in traumatic brain injury (TBI) research at 1 to 2 years postinjury. Setting: Community. Participants: With dates of injury between October 1, 2002, and March 31, 2013, 5548 whites, 1347 blacks, and 790 Hispanics enrolled in the Traumatic Brain Injury Model Systems National Database. Design: Retrospective database analysis. Main Measure: Retention, defined as completion of at least 1 question on the follow-up interview by the person with TBI or a proxy. Results: Retention rates 1 to 2 years post-TBI were significantly lower for Hispanic (85.2%) than for white (91.8%) or black participants (90.5%) and depended significantly on history of problem drug or alcohol use. Other variables associated with low retention included older age, lower education, violent cause of injury, and discharge to an institution versus private residence. Conclusions: The findings emphasize the importance of investigating retention rates separately for blacks and Hispanics rather than combining them or grouping either with other races or ethnicities. The results also suggest the need for implementing procedures to increase retention of Hispanics in longitudinal TBI research.

Original languageEnglish (US)
Pages (from-to)219-227
Number of pages9
JournalJournal of Head Trauma Rehabilitation
Volume33
Issue number4
DOIs
StatePublished - Jul 1 2018
Externally publishedYes

Fingerprint

Hispanic Americans
Outcome Assessment (Health Care)
Databases
Wounds and Injuries
Proxy
Research
Alcohols
Traumatic Brain Injury
Interviews
Education
Pharmaceutical Preparations

Keywords

  • cultural competency
  • follow-up studies
  • traumatic brain injury

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation
  • Clinical Neurology

Cite this

Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research : A Traumatic Brain Injury Model Systems National Database Study. / Sander, Angelle M.; Lequerica, Anthony H.; Ketchum, Jessica M.; Hammond, Flora M.; Gary, Kelli Williams; Pappadis, Monique; Felix, Elizabeth R.; Johnson-Greene, Douglas; Bushnik, Tamara.

In: Journal of Head Trauma Rehabilitation, Vol. 33, No. 4, 01.07.2018, p. 219-227.

Research output: Contribution to journalArticle

Sander, Angelle M. ; Lequerica, Anthony H. ; Ketchum, Jessica M. ; Hammond, Flora M. ; Gary, Kelli Williams ; Pappadis, Monique ; Felix, Elizabeth R. ; Johnson-Greene, Douglas ; Bushnik, Tamara. / Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research : A Traumatic Brain Injury Model Systems National Database Study. In: Journal of Head Trauma Rehabilitation. 2018 ; Vol. 33, No. 4. pp. 219-227.
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