TY - JOUR
T1 - Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research
T2 - A Traumatic Brain Injury Model Systems National Database Study
AU - Sander, Angelle M.
AU - Lequerica, Anthony H.
AU - Ketchum, Jessica M.
AU - Hammond, Flora M.
AU - Gary, Kelli Williams
AU - Pappadis, Monique R.
AU - Felix, Elizabeth R.
AU - Johnson-Greene, Douglas
AU - Bushnik, Tamara
N1 - Funding Information:
and Translational Science Award (UL1RR029876), and the National Institute on Minority Health and Health Disparities (NIMHD) contract number L60 MD009326 [Dr Pappadis]. NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this publication do not necessarily represent the policy or official views of NIDILRR, ACL, AHRQ, NIA, NIH, or HHS, and you should not assume endorsement by the Federal Government.
Funding Information:
The contents of this publication were developed under grants from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant numbers 90DPTB0016, 90DP0028, 90DP0060, and 90RT5007 [TIRR], 90DP0032 [Kessler], 90DP0034 and 90DP0084 [Craig], 90DP0036 [Indiana], 90DP0046 [Miami], 90DP0047 [New York], and 90DP0033 [Virginia]); the Agency for Healthcare Research and Quality (AHRQ grant number R24HS022134); UTMB Claude D. Pepper Older Americans Independence Center funded by the National Institute on Aging (NIA grant number 5P30-AG024832); the UTMB Institute for Translational Sciences supported by a National Institutes of Health (NIH) Clinical
Publisher Copyright:
© Copyright 2018 Wolters Kluwer Health, Inc. All rights reserved.
PY - 2018/7/1
Y1 - 2018/7/1
N2 - Objective: To investigate the contribution of race/ethnicity to retention in traumatic brain injury (TBI) research at 1 to 2 years postinjury. Setting: Community. Participants: With dates of injury between October 1, 2002, and March 31, 2013, 5548 whites, 1347 blacks, and 790 Hispanics enrolled in the Traumatic Brain Injury Model Systems National Database. Design: Retrospective database analysis. Main Measure: Retention, defined as completion of at least 1 question on the follow-up interview by the person with TBI or a proxy. Results: Retention rates 1 to 2 years post-TBI were significantly lower for Hispanic (85.2%) than for white (91.8%) or black participants (90.5%) and depended significantly on history of problem drug or alcohol use. Other variables associated with low retention included older age, lower education, violent cause of injury, and discharge to an institution versus private residence. Conclusions: The findings emphasize the importance of investigating retention rates separately for blacks and Hispanics rather than combining them or grouping either with other races or ethnicities. The results also suggest the need for implementing procedures to increase retention of Hispanics in longitudinal TBI research.
AB - Objective: To investigate the contribution of race/ethnicity to retention in traumatic brain injury (TBI) research at 1 to 2 years postinjury. Setting: Community. Participants: With dates of injury between October 1, 2002, and March 31, 2013, 5548 whites, 1347 blacks, and 790 Hispanics enrolled in the Traumatic Brain Injury Model Systems National Database. Design: Retrospective database analysis. Main Measure: Retention, defined as completion of at least 1 question on the follow-up interview by the person with TBI or a proxy. Results: Retention rates 1 to 2 years post-TBI were significantly lower for Hispanic (85.2%) than for white (91.8%) or black participants (90.5%) and depended significantly on history of problem drug or alcohol use. Other variables associated with low retention included older age, lower education, violent cause of injury, and discharge to an institution versus private residence. Conclusions: The findings emphasize the importance of investigating retention rates separately for blacks and Hispanics rather than combining them or grouping either with other races or ethnicities. The results also suggest the need for implementing procedures to increase retention of Hispanics in longitudinal TBI research.
KW - cultural competency
KW - follow-up studies
KW - traumatic brain injury
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U2 - 10.1097/HTR.0000000000000395
DO - 10.1097/HTR.0000000000000395
M3 - Article
C2 - 29863614
AN - SCOPUS:85052696277
SN - 0885-9701
VL - 33
SP - 219
EP - 227
JO - Journal of Head Trauma Rehabilitation
JF - Journal of Head Trauma Rehabilitation
IS - 4
ER -