Representativeness of the Spinal Cord Injury Model Systems National Database

Jessica M. Ketchum, Jeffrey P. Cuthbert, Anne Deutsch, Yuying Chen, Susan Charlifue, David Chen, Marcel P. Dijkers, James E. Graham, Allen W. Heinemann, Daniel P. Lammertse, Gale G. Whiteneck

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Study design: Secondary analysis of prospectively collected observational data. Objectives: To assess the representativeness of the Spinal Cord Injury Model Systems National Database (SCIMS-NDB) of all adults aged 18 years or older receiving inpatient rehabilitation in the United States (US) for new onset traumatic spinal cord injury (TSCI). Setting: Inpatient rehabilitation centers in the US. Methods: We compared demographic, functional status, and injury characteristics (nine categorical variables comprising of 46 categories and two continuous variables) between the SCIMS-NDB (N = 5969) and UDS-PRO/eRehabData (N = 99,142) cases discharged from inpatient rehabilitation in 2000–2010. Results: There are negligible differences (<5%) between SCIMS-NDB patients and the population for 31 of the 48 comparisons. Minor differences (5–10%) exist for age categories, sex, race/ethnicity, marital status, FIM Motor score, and time from injury to rehabilitation admission. Important differences (>10%) exist in mean age and preinjury occupational status; the SCIMS-NDB sample was younger and included a higher percentage of individuals who were employed (62.7 vs. 41.7%) and fewer who were retired (10.2 vs. 36.1%). Conclusions: Adults in the SCIMS-NDB are largely representative of the population of adults receiving inpatient rehabilitation for new onset TSCI in the US. However, users of the SCIMS-NDB may need to adjust statistically for differences in age and preinjury occupational status to improve generalizability of findings.

Original languageEnglish (US)
Pages (from-to)1-7
Number of pages7
JournalSpinal Cord
DOIs
StateAccepted/In press - Nov 6 2017

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Spinal Cord Injuries
Databases
Inpatients
Rehabilitation
Rehabilitation Centers
Demography
Wounds and Injuries
Population

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology

Cite this

Ketchum, J. M., Cuthbert, J. P., Deutsch, A., Chen, Y., Charlifue, S., Chen, D., ... Whiteneck, G. G. (Accepted/In press). Representativeness of the Spinal Cord Injury Model Systems National Database. Spinal Cord, 1-7. https://doi.org/10.1038/s41393-017-0010-x

Representativeness of the Spinal Cord Injury Model Systems National Database. / Ketchum, Jessica M.; Cuthbert, Jeffrey P.; Deutsch, Anne; Chen, Yuying; Charlifue, Susan; Chen, David; Dijkers, Marcel P.; Graham, James E.; Heinemann, Allen W.; Lammertse, Daniel P.; Whiteneck, Gale G.

In: Spinal Cord, 06.11.2017, p. 1-7.

Research output: Contribution to journalArticle

Ketchum, JM, Cuthbert, JP, Deutsch, A, Chen, Y, Charlifue, S, Chen, D, Dijkers, MP, Graham, JE, Heinemann, AW, Lammertse, DP & Whiteneck, GG 2017, 'Representativeness of the Spinal Cord Injury Model Systems National Database', Spinal Cord, pp. 1-7. https://doi.org/10.1038/s41393-017-0010-x
Ketchum JM, Cuthbert JP, Deutsch A, Chen Y, Charlifue S, Chen D et al. Representativeness of the Spinal Cord Injury Model Systems National Database. Spinal Cord. 2017 Nov 6;1-7. https://doi.org/10.1038/s41393-017-0010-x
Ketchum, Jessica M. ; Cuthbert, Jeffrey P. ; Deutsch, Anne ; Chen, Yuying ; Charlifue, Susan ; Chen, David ; Dijkers, Marcel P. ; Graham, James E. ; Heinemann, Allen W. ; Lammertse, Daniel P. ; Whiteneck, Gale G. / Representativeness of the Spinal Cord Injury Model Systems National Database. In: Spinal Cord. 2017 ; pp. 1-7.
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