TY - JOUR
T1 - Responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) Measurement System
AU - Poritz, Julia M.P.
AU - Sherer, Mark
AU - Kisala, Pamela A.
AU - Tulsky, David
AU - Leon-Novelo, Luis
AU - Ngan, Esther
N1 - Funding Information:
Developed under grants from the National Institute on Disability, Independent Living, and Rehabilitation Research ([NIDILRR] grant numbers 90RT5007, 90DP0028). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this article do not necessarily represent the policies of NIDILRR, ACL, HHS, and endorsement by the federal government should not be assumed.
Publisher Copyright:
© 2018 American Congress of Rehabilitation Medicine
PY - 2020/1
Y1 - 2020/1
N2 - Objective: To assess the responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) measurement system. Design: Participants completed the 20 TBI-QOL item banks and the Participation Assessment with Recombined Tools–Objective (PART-O) Productivity Subscale at baseline and 6-month follow-up assessments. Participants were categorized into 4 groups (increased productivity, unchanged productivity, and decreased productivity) based on PART-O Productivity scores. Paired sample t tests were used to compare TBI-QOL scores at baseline and 6 months, and standardized response means and Cohen's d were computed to estimate effect sizes. Setting: Three traumatic brain injury (TBI) Model Systems rehabilitation centers in the United States. Participants: Two hundred one community-dwelling adults with TBI. Interventions: Not applicable. Main Outcome Measures: 20 TBI-QOL item banks. Results: As expected, given that there was no intervention, group mean TBI-QOL subdomain scores for the entire sample showed no change or small improvement over the 6-month study period. At the follow-up assessment, 72 participants reported increased productivity, 71 reported decreased productivity, and 58 reported the same level of productivity as they had 6 months prior. When compared with participants who reported unchanged or decreased productivity, participants who reported increased productivity on the PART-O subscale had clinically meaningful (d≥0.30) improvements on 7 TBI-QOL measures. The largest improvement was in the Independence subdomain (mean change, 7.06; df=0.84), with differences also observed in the Mobility, Positive Affect and Well-Being, Resilience, Grief/Loss, Ability to Participate, and Satisfaction with Participation subdomains. Conclusions: The 20 TBI-QOL item banks demonstrate responsiveness to change and measurement stability in a community-dwelling sample. Researchers may use the TBI-QOL to detect changes in HRQOL after a clinical intervention and clinicians may use it in their daily practices to monitor patient recovery.
AB - Objective: To assess the responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) measurement system. Design: Participants completed the 20 TBI-QOL item banks and the Participation Assessment with Recombined Tools–Objective (PART-O) Productivity Subscale at baseline and 6-month follow-up assessments. Participants were categorized into 4 groups (increased productivity, unchanged productivity, and decreased productivity) based on PART-O Productivity scores. Paired sample t tests were used to compare TBI-QOL scores at baseline and 6 months, and standardized response means and Cohen's d were computed to estimate effect sizes. Setting: Three traumatic brain injury (TBI) Model Systems rehabilitation centers in the United States. Participants: Two hundred one community-dwelling adults with TBI. Interventions: Not applicable. Main Outcome Measures: 20 TBI-QOL item banks. Results: As expected, given that there was no intervention, group mean TBI-QOL subdomain scores for the entire sample showed no change or small improvement over the 6-month study period. At the follow-up assessment, 72 participants reported increased productivity, 71 reported decreased productivity, and 58 reported the same level of productivity as they had 6 months prior. When compared with participants who reported unchanged or decreased productivity, participants who reported increased productivity on the PART-O subscale had clinically meaningful (d≥0.30) improvements on 7 TBI-QOL measures. The largest improvement was in the Independence subdomain (mean change, 7.06; df=0.84), with differences also observed in the Mobility, Positive Affect and Well-Being, Resilience, Grief/Loss, Ability to Participate, and Satisfaction with Participation subdomains. Conclusions: The 20 TBI-QOL item banks demonstrate responsiveness to change and measurement stability in a community-dwelling sample. Researchers may use the TBI-QOL to detect changes in HRQOL after a clinical intervention and clinicians may use it in their daily practices to monitor patient recovery.
KW - Health-related quality of life
KW - Patient-reported outcome measure
KW - Traumatic brain injury
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U2 - 10.1016/j.apmr.2017.11.018
DO - 10.1016/j.apmr.2017.11.018
M3 - Article
C2 - 29407517
AN - SCOPUS:85042626529
SN - 0003-9993
VL - 101
SP - 54
EP - 61
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
IS - 1
ER -