TY - JOUR
T1 - The citizen scientist
T2 - Community-academic partnerships through Translational Advisory Boards
AU - Patel, Darpan I.
AU - Winkler, Paula
AU - Botello, Jorge
AU - Villarreal, Jocelin
AU - Puga, Frank
N1 - Funding Information:
TABs were brought to South Texas communities by the South Central AHEC and UTHSCSA Institute to Integrate Medicine and Science (IIMS), a department funded by the National Institute of Health (NIH) through a Clinical & Translational Science Award. One self-nominated community champion from each of the 5 counties surrounding San Antonio took the lead in developing the TABs in collaboration with UTHSCSA. Each champion held several orientation meetings that were held with the Community Engagement Research Team at UTHSCSA to recruit 5–7 community representatives that will comprise the TAB.
Funding Information:
The Translational Advisory Boards are a part of the Institute for the Integration of Medicine and Science at UTHSCSA are supported by the National Center for Advancing Translational Sciences, National Institutes of Health, through Grant UL1 TR001120. The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIH.”
Funding Information:
The 2015 Summer Institute was supported through a Patient-Centered Outcomes Research Institute (PCORI) Program Award (EA-2186-UTHSCSA).
Publisher Copyright:
© 2016 Elsevier Ireland Ltd
PY - 2016/12/1
Y1 - 2016/12/1
N2 - Objective To describe the effectiveness of engaging patient partners as “citizen scientists” in the research process to boost patient centered outcomes research in underrepresented populations. Methods Translational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement. Results Three health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations. Conclusion Patient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation's deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve. Practice implications These lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.
AB - Objective To describe the effectiveness of engaging patient partners as “citizen scientists” in the research process to boost patient centered outcomes research in underrepresented populations. Methods Translational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement. Results Three health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations. Conclusion Patient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation's deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve. Practice implications These lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.
KW - Community engagement
KW - Patient centered outcomes research
KW - Patient engagement
KW - Stakeholder engagement
KW - Translational Advisory Boards
UR - http://www.scopus.com/inward/record.url?scp=84997282908&partnerID=8YFLogxK
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U2 - 10.1016/j.pec.2016.07.013
DO - 10.1016/j.pec.2016.07.013
M3 - Article
C2 - 27432015
AN - SCOPUS:84997282908
SN - 0738-3991
VL - 99
SP - 2087
EP - 2090
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 12
ER -