TY - JOUR
T1 - The citizen scientist
T2 - Community-academic partnerships through Translational Advisory Boards
AU - Patel, Darpan I.
AU - Winkler, Paula
AU - Botello, Jorge
AU - Villarreal, Jocelin
AU - Puga, Frank
N1 - Publisher Copyright:
© 2016 Elsevier Ireland Ltd
PY - 2016/12/1
Y1 - 2016/12/1
N2 - Objective To describe the effectiveness of engaging patient partners as “citizen scientists” in the research process to boost patient centered outcomes research in underrepresented populations. Methods Translational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement. Results Three health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations. Conclusion Patient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation's deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve. Practice implications These lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.
AB - Objective To describe the effectiveness of engaging patient partners as “citizen scientists” in the research process to boost patient centered outcomes research in underrepresented populations. Methods Translational Advisory Boards in South Texas have effectively collaborated with University researchers to develop community-based patient centered research. Here we describe innovative approaches in research to engage patients and offer practical methods to enhance partnerships between patients and researchers to facilitate patient engagement. Results Three health issues identified by the TABs were diabetes, obesity and teen pregnancy Examples of other community inspired research topics include air and water quality, methicillin-resistant staphylococcus aureus, intimate partner violence, chronic pain, and human papilloma virus and hepatitis C vaccinations. Conclusion Patient engagement of underrepresented populations is inverse to the vast disparities they experience. In order to adequately address our nation's deficits in providing equitable healthcare, we must fully integrate disparate partners into the research process. By engaging community champions, academic health centers can fully integrate meaningful interventions on topics of interest to the catchment area in which they serve. Practice implications These lessons can be used in developing local and regional collaborations across the country to boost active participation of patient stakeholder in PCOR to reduce healthcare disparities and improve our healthcare systems.
KW - Community engagement
KW - Patient centered outcomes research
KW - Patient engagement
KW - Stakeholder engagement
KW - Translational Advisory Boards
UR - http://www.scopus.com/inward/record.url?scp=84997282908&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84997282908&partnerID=8YFLogxK
U2 - 10.1016/j.pec.2016.07.013
DO - 10.1016/j.pec.2016.07.013
M3 - Article
C2 - 27432015
AN - SCOPUS:84997282908
SN - 0738-3991
VL - 99
SP - 2087
EP - 2090
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 12
ER -