The ethics of fertility preservation for pediatric patients with differences (disorders) of sex development

Lisa Campo-Engelstein, Diane Chen, Arlene B. Baratz, Emilie K. Johnson, Courtney Finlayson

Research output: Contribution to journalArticle

14 Scopus citations

Abstract

Differences (disorders) of sex development are diverse conditions with variations in chromosomal, gonadal, and/or genital development. Fertility potential in this population is variable. Recent investigations into fertility potential in those previously thought to be infertile suggest that the majority may have fertility potential through experimental protocols. Fertility preservation may be more successful if pursued in childhood. As fertility research and techniques advance, it is important to carefully consider pediatric ethical issues specific to this population, including gonadectomy, consent/assent, experimental treatment and false hope, cost and insurance coverage, genetic transmission to offspring, and gender dysphoria.

Original languageEnglish (US)
Pages (from-to)638-645
Number of pages8
JournalJournal of the Endocrine Society
Volume1
Issue number6
DOIs
StatePublished - Jun 2017

Keywords

  • Differences (disorders) of sex development
  • Ethics
  • Fertility preservation

ASJC Scopus subject areas

  • Endocrinology, Diabetes and Metabolism

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